Tools & Resources
CF Transition Australia gives people with CF a complete toolset to work with their families and care teams to prepare for greater independence and success in the future.
Tools & Resources
CF Transition Australia gives people with CF a complete toolset to work with their families and care teams to prepare for greater independence and success in the future.
How will you measure progress?
Use these helpful tools to check your learning and knowledge.
Knowledge Assessments
Helps identify areas where the person with CF can improve their knowledge on important CF topics so a personalized educational plan can be developed
WHO
People with CF ages 16-25
WHERE
Monash CF (pilot)
WHEN
Each quarterly CF center visit or at the CF care team’s discretion
Responsibilities Checklists
Helps someone with CF develop appropriate self-care skills by working with their parents or support system and CF care team
WHO
People with CF ages 16-25 & parent(s)/support person(s)
WHERE
Monash CF (pilot)
WHEN
Annually or at the CF care team’s discretion
Care Team Resources
Helps care team members administer CF Transition Australia and educate people with CF and their families about this program
WHO
Care teams
WHERE
Used in CF Centre
WHEN
To support program education and administration
Knowledge Assessments
Goal:
To help the person with CF understand their level of CF knowledge in various aspects of CF care
Responsibilities Checklists
Goal:
To help the caregiver and patient gradually transition responsibility for CF care at home, in the medical system and in daily life to the person with CF
Checklists for Support Persons
Checklists for People with CF
Care Team Resource tests
Goal:
To help care team members administer CF Transition Australia and educate people with CF and their families about this program
Tools to Educate People with CF and Their Families about CF Transition Australia and Transition
Handout that can be used in clinic or sent home, explaining the importance of transition and providing a high-level overview of the CF Transition Australia program
PowerPoint presentation that can be customized for CF Family Education Days (Upon selection, this document begins downloading to your device)
An overview of age-appropriate CF skills and knowledge that a family can work toward as the person with CF grows up
Provides detailed list of CF skills and knowledge, organized by age and stage, that a family can work toward as the person with CF grows up
Tools to Help You Administer CF Transition Australia
Helpful tools for people with CF and their families which provide definitions and pronunciations of commonly used CF-related terms
Resource to track how a person with CF is progressing, including results history and transition goals
Provides a detailed description of the CF Transition Australia tools and tips for implementation
A template for care teams to complete after training to help bring structure to how, when, where, and by whom the program will be implemented
Knowledge Assessments
Goal:
To help the person with CF understand their level of CF knowledge in various aspects of CF care
Responsibilities Checklists
Goal:
To help the caregiver and patient gradually transition responsibility for CF care at home, in the medical system and in daily life to the person with CF
Checklists for Support Persons
Checklists for People with CF
Care Team Resource
Goal:
To help care team members administer CF Transition Australia and educate people with CF and their families about this program
Tools to Educate People with CF and Their Families about CF Transition Australia and Transition
Handout that can be used in clinic or sent home, explaining the importance of transition and providing a high-level overview of the CF Transition Australia program
PowerPoint presentation that can be customized for CF Family Education Days (Upon selection, this document begins downloading to your device)
An overview of age-appropriate CF skills and knowledge that a family can work toward as the person with CF grows up
Provides detailed list of CF skills and knowledge, organized by age and stage, that a family can work toward as the person with CF grows up
Tools to Help You Administer CF Transition Australia
Helpful tools for people with CF and their families which provide definitions and pronunciations of commonly used CF-related terms
Resource to track how a person with CF is progressing, including results history and transition goals
Provides a detailed description of the CF Transition Australia tools and tips for implementation
A template for care teams to complete after training to help bring structure to how, when, where, and by whom the program will be implemented
Our Team
Those living with CF, their parents and care teams can gain valuable insight from the Transition Advisory Council (TAC), a supportive group comprised of CF experts.